独特的计划支持脑癌患者的亲人

What we're doing for caregivers

当约翰逊与母亲的诊断作斗争时，她听说了 加州大学旧金山分校神经肿瘤学戈登·默里护理人员项目, 兰迪·默里在她丈夫死后成立的, Gordon Murray, a former Wall Street executive. She and neuro-oncologist Dr. Susan M. Chang 该项目于2014年启动，由Chang担任导演. 今天，它成为其他十大赌博平台排行榜为护理人员开发支持服务的典范.

“支持脑癌患者的家庭是一种独特的需求,项目联合主任兼神经肿瘤学家说 Dr. Jennie Taylor. “脑癌不同于其他癌症. 肿瘤本身会导致大脑受压和扭曲, 手术可能会导致额外的侮辱和伤害, 导致可能因其他治疗而恶化的人格改变. Patients may seem apathetic or lacking in motivation; they may be more impulsive and less likely to filter their thoughts."

行为和身体上的变化会导致照顾者对“失去健康”感到悲伤, the future you thought you had,项目协调员兼神经肿瘤学护士说 Margaretta Page.

约翰逊参加了一个每月一次的护理人员在线支持小组，并参加了一年一度的静修活动以及有关实际问题的教育研讨会, such as health insurance and home safety. Today, several months after her mother's diagnosis, Johnson feels a little less alone, 这要归功于她与其他看护人建立的联系，以及坎迪斯·贝拉斯科对她的温柔关怀, the program's administrative manager.

Don the cape, gold cuffs and tiara

As for Maurer, 她一如既往地对生活充满热情, 她有时把自己的诊断视为“又一个障碍”," according to Johnson. Maurer uses a cane occasionally, 累了就打个盹，希望能继续为高中生做志愿者.

约翰逊专注于享受最好的时刻, especially her mom's humor, 回忆起Maurer在接受高能光束照射肿瘤部位的放射治疗时，十大赌博平台排行榜建议他穿着舒适. Comfortable clothes? 为什么不穿着女超人斗篷，戴着金色袖口和头饰出场呢? So that's just what Maurer did.

"She's hilarious," says Johnson.

当Mauer在治疗后等电梯时, a provider asked about her "costume," Johnson recalls. "What costume?" Maurer said without missing a beat. 约翰逊说:“我妈妈有一种魔力，能把人们吸引到她身边. “他们看到她，想要了解她."

A brain tumor hasn't changed that.